This is the challenge of coming to terms with a progressive disability.
Friday, 10 May 2013
Memory and progressive physical disability
There is an important consequence that arises as my movement becomes more challenging: the feeling of my body not working properly becomes set against the memories of what free movement feels like. Therefore, it is not necessarily the impaired movement that causes the emotional damage but the relative gap between expectations based on memories and current levels of movement. Such a gap between feelings makes my current movement appear much worse.